This is only if you opted into research. And I am actually happy this is happening. If only one person is helped by research outcomes or medications developed from this, I am happy. I don’t care if 23andMe gets rich from it or not.
H-h-how? HOW? do they ‘anonymize’ DNA?!?! Remember how in 2007 ‘anonymized’ netflix data was linked back to actual members? That was just checking what people watched on Netflix compared to what they rated on IMDB.
With DNA, you should be able to figure out who someone is by the fact you an exact DNA record! I mean, it’ll share similarities with your parents, and children, and to a lesser degree, more removed relatives. How hard can it be to figure out that this woman is related to that guy with an arrest record. Or more specifically: this is the exact person because we see other records from any doctor or whatever with the same DNA.
H-h-how? HOW? do they ‘anonymize’ DNA?!?!
If you really curious, it is possible depending on the sections of the DNA being shared and how aggregated they are. Not saying that this will be the case - it’s quite likely that this sale would be done prioritizing value instead of privacy - but it is possible. The key part is to not treat the whole DNA as a data sample, but specific sequence sections, as isolated as possible.
And the Netflix example is instructive but not super relevant here. If you already have your SNPs in a public database out there, then yeah 23andMe might not be able to effectively anonymize your samples; but you don’t (I hope).
All prisoners in the US, regardless of infraction, have DNA samples taken in many states.
That is not voluntary.
It was ruled constitutional by SCOTUS.
If you had that done, and you have family dumb enough to use 23andme, then you just got screwed, involuntarily, twice.
A vast majority of those millions are going to be for the identity rather than just the relevant data. Meanwhile, the genetic profiling companies, drug companies and insurance companies are sociopathic enough to lie through their noses about it.
I have a strong feeling that the data transfer has already happened through data brokers. They are just easing the public into acceptance.
As a general rule, when someone says that data is anonymized, they’re one part lying and one part clueless. It sounds great when they say it, but ultimately it’s bullshit. Maybe if we started calling claims like this lies when they were made, a few more people would pay attention.
all they ever wanted was a database to sell. we keep falling for the same game…
When we said that data was the new oil in the 80’s, nobody listened.
They still haven’t listened, but if you own stock in those companies at least it’s profitable.
I tried telling my family this from the jump but half of them have used these services. Now me and all their descendants are fucked over because they just had to be idiots. It’s extra stupid because we already have our genealogy on both sides going back to like 1500s.
